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Research Grants

Through the award of grants, Hope for Hypothalamic Hamartomas actively supports research into hypothalamic hamartomas, as well as professional conferences to facilitate the exchange of ideas, techniques and data amongst scientists and clinicians.Donate to Research Apply for Research GrantResearch Genomic Profiling of HH Derived Samples Obtained During Magnetic Resonance-Guided Laser Interstitial Thermal Therapy Epilepsy Research…

Hope for HH Newsletters

Hope for HH Newsletters provide information and current news on research, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our e-Newsletters, Grant Award Announcements, Research Updates and information on upcoming fundraising events. Click Here Sign Up2023 February 2023 #1 – Announcing the 2022 Rosenfeld Rekate Pioneer Award…

News

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Partners

Hope for HH has formed strategic partnerships with leaders in epilepsy including government agencies, professional societies, and disease-based advocacy organizations. Through these partnerships, Hope for HH seeks to ensure our patients have access to cutting edge information and support, to educate health professionals about HH and to ensure expeditious and correct diagnosis. We also hope…

In Memory

Our Impact

Hope for Hypothalamic Hamartomas (www.hopeforhh.org) recently celebrated 10 years of service to HH patient and professional communities. Hope for HH’s creation as a 501c3 non-profit organization stemmed from each founding Board member’s struggle to obtain timely diagnosis, medically accurate information, and access to expert advice concerning prognosis, treatment and comorbidities. Bound by this rare brain…

Medical Advisory Board

J. Helen Cross, MD London, England Hope For HH, Medical Advisory Board Chairman (2015 – Present) Head of Neuroscience Unit, UCL Institute of Child Health Alexis Arzimanoglou, MD Barcelona, Spain Professor, Head of the Department of Pediatric Clinical Epileptology, Sleep Disorders and Functional Neurology, University Hospitals Lyon, France Visiting Professor Universitat de Barcelona and Epilepsy…

Board of Directors

Hope for Hypothalamic Hamartomas is led by a volunteer Board of Directors comprised of five parents of individuals with HH. Many volunteers have walked alongside us since 2009 and we appreciate the time and impact of their contributions. Executive Board and Directors Board Members

Treatment

What is HH?

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