At the age of 20, my husband and I were considering having our first baby together. I had so many concerns going around in my mind. Could the medication I was taking cause harm to our baby? Will the baby have seizures like me? How will I manage the sleepless nights? What will happen if…
PagesAbout Hope for HH Board of Directors In Memory Medical Advisory Board Our Impact Our Mission Partners Blog Contact For Professionals Get Involved Join Contact Registry Meet Other Families Glossary Home Hope for HH Cookie Policy Hope for HH Newsletters MDTF Results Page Medical Disclaimer News, Research & Resources HH Research Articles How You Can…
Understanding HH Overview Incidence and Prevalence Etiology HH Lesion Types Diagnosis of HH Age of Seizure Onset Presentation of Seizure Types How Seizures Change Over Time Treatment Comorbidities For Professionals Overview Hypothalamic hamartomas (HH) are lesions that arise in the ventral hypothalamic region while the brain is forming in utero. The syndrome is commonly associated…
MEG (magnetoencephalography) uses a machine to record magnetic fields from the brain. This may show more information than a conventional EEG. It is performed to map brain function and to identify the exact location of the source of epileptic seizures. The exam can also be correlated with an MRI. Unfortunately, preliminary evidence suggests that although…
Video EEG is the same as an EEG but with a video. The study is completed over a few days in the hospital to hopefully witness a seizure. Patients or caregivers could be asked to push a button to indicate when a possible seizure event is happening, or they can be monitored real time by…
EEG is a test that detects electrical activity in the brain using small, metal discs (electrodes) attached to the scalp. The brain is constantly sending electrical signals even while sleeping. Because the HH is deep within the brain, far away from the scalp EEG electrodes, the EEG may not detect any abnormal activity during a…
Watch these free educational videos regarding hypothalamic hamartomas including treatment, comorbidities, and current research. We’ve also included patient and caregiver stories to help provide others in the community with support and comfort on this difficult journey. About Hope for HHIntroduction to HHPatient StoriesTreatment OptionsEndocrineNeuropsychologicalBehavior & CognitionResearch in HH2022 Brazil Webinar2021 Patient Conference2019 Symposium VideosAbout Hope…
[meta_data_filter_results]
Last Updated: 25 January 2021 1. The Purpose a. The Hope For Hypothalamic Hamartomas virtual events were established by Hope For HH for individuals, parents, caregivers, and families impacted by hypothalamic hamartomas. The purpose of these events is to create a community where affected individuals and families can turn for support and guidance from others in…