Meet Brett

Meet Brett

Mark and I married 8 years ago, in our mid-thirties, and wanted nothing more than to be parents.  Our journey to parenthood took the course of unsuccessful infertility treatments, as well as domestic newborn adoption.  Brett was born on Saturday, October 5,...
This Is My Why | Lisa Soeby

This Is My Why | Lisa Soeby

As we continue through International Hypothalamic Hamartoma Awareness month we are sharing the ‘Why’ of the Hope For HH board members. They were asked to share their reasons for being part of this organization and for generously volunteering their time and...
This is My Why | Kathy Jensen

This is My Why | Kathy Jensen

During our annual board training, each board member was asked to describe their ‘Why’. Why do you support Hope For HH? Why do you volunteer your time? Why is Hope For HH important to you and your family? Why do you feel it is important to be an active...
Meet Lou

Meet Lou

Meet Lou – A Story of Hope Lou’s story, like many others on this site, begins with a series of misdiagnoses. When he was an infant he was making an odd sound — a  repetitive ‘ho-ho’ that wasn’t very laughter-like. Our baby would make noises every 15 minutes,...