For this week only (Today – Sat, Nov 26), Hope for HH will be offering our limited edition cups and water bottles to those individuals who are willing to Join Us and help make a difference for others with HH! We will be drawing names from the list of individuals that complete and submit the…
This week we are meeting up with Jill Nico – the Program Advisor for Disability Resources and Services at Estrella Mountain Community College in Avondale, AZ. She assures equal access for students with disabilities, provides individualized coaching, and plans campus events related to disability issues for young adults. She has served in higher education in…
What is rs-FMRI? And why is it relevant to HH? Hear how Dr. Varina Boerwinkle, Pediatric Neurologist, Director of Resting State Functional MRI, Texas Children’s Hospital is using resting state functional MRI at Texas Children’s Hospital to better target HH for surgery like laser ablation. More than 70 patients have been tested. You can listen to…
I have a confession to make, we are a bit addicted to Amazon in our house and we use it for dog food, gifts, clothes, household goods – really you name it. AmazonSmile is a website operated by Amazon with the same products, prices, and shopping features as Amazon.com. The difference is that when you shop…
The importance of a good team can never be underestimated, especially when it comes to choosing your team of medical professionals for HH treatment. For patients that have been to either Barrow Neurological Institute at St. Joseph’s Hospital (SJH) or Barrow Neurological Institute at Phoenix Children’s Hospital (PCH) in Phoenix, Arizona – there is an…
I remember driving my car many years ago, listening to one of my favorite radio shows, Car Talk – Click and Clack The Tappit Brothers. At the close of their show on this particular day, they ended with the usual clever banter. But for me, this day would be anything but funny. One brother said…
An exciting new study has launched to evaluate the use of focused ultrasound to destroy hypothalamic hamartomas. Learn more about the procedure and the study from Dr. Nathan Fountain. Listen to an interview and see images of this new procedure below. Hypothalamic hamartoma Hypothalamic hamartoma (HH) is a rare condition where a tumor-like structure…
This month you can give and save even more on “Goodshop Sundays!” When you shop on Good Shop through 11/27, even more of your purchase will benefit Hope for Hypothalamic Hamartomas. So whether you are buying shoes for your kids, clothes for you, home goods, travel, cleaning products, or holiday gifts – nearly anything –…
Understanding HH, what it is and how it will impact me or my loved one, is hard enough. But how will I explain it all to friends and family, when I am not sure myself? For so many families, once we have embraced the diagnosis and work desperately to move on with the new circumstances,…
30,000 patients live with HH everyday. Help HOPE raise awareness of epilepsy, seizures and HH. Click here to find out how.