Hypothalamic hamartomas (HH) have long been described in medical literature as sporadic (random) in their occurrence, and the precise cause has yet to be determined. The identification of genes associated with HH can help us better understand how to treat and diagnose as well as understand the normal development and function of the hypothalamus.
Hello Everyone, My name is Afsoon Movahed and I’m a Hope For HH intern and guest blogger. Today’s blog is an incredible story of love and compassion. So often we focus on the individual with a hypothalamic hamartoma (HH), but we know that HH impacts an entire family. Siblings often have to handle fear, disappointment,…
In October 2018, we first noticed Chloe having what we called staring episodes. She would all of sudden have a blank facial expression and not respond to us. These episodes would last for 45 seconds – 1 minute. Afterward, she would seem confused and sometimes tired. We noticed that these would follow these bouts of…
Hope for HH would like to introduce and send a warm welcome to the newest member of our team – Afsoon Movahed! Afsoon is joining us as an Intern and will be working on a wide variety of projects. One of those projects will be blogs. She will be interviewing some our families and individuals…
Pituitary Awareness Month – Adrenal Insufficiency October is Pituitary Awareness Month – and you may be asking yourself “Why should I care if I, or my loved one, have an hypothalamic hamartoma (HH) and NOT a pituitary tumor? Well, the hypothalamus is the master gland that feeds information to the pituitary gland, and when it…
Etiam scelerisque iaculis felis, eu sollicitudin arcu hendrerit vitae. Aliquam eget dapibus nulla. In nulla enim, fermentum nec placerat hendrerit, sagittis et diam. Fusce eget nibh et lacus tincidunt rhoncus
Vestibulum et metus nulla. Hitrices orci leo, et feugiat eros tristique et. Proin ligula justo, iaculis quis ornare in, orem ipsum dolor glavrida.Nam id sem quis mauris porttitor conse quat id vitae dolor. Phasellus ligula velit molestie rhoncus ullamcorper mauris ultricies mi at pharetra.
Proin lorem ipsum dolor glavrida ligula justo, iaculis quis ornare in, tempus id purus. Vestibulum et metus nulla.
Viva ladiet metus nulla. Hitrices orci leo, et feugiat eros tristique et. Proin ligula justo, iaculis quis ornare in nulla purus amitos.