If you or a loved one have a hypothalamic Hamartoma (HH), this is the not to miss event of 2017. Join Hope for HH in Washington, DC for a day and half of information, support, and community at the DC Family Forum, Dec. 2-3. The event will include an update on the most current information…
MEET OUR DC FAMILY FORUM SPEAKERS – DR. KERRIGAN In this series, we will introduce you to the experts inside and outside of the HH community who will be presenting at the DC Family Forum on December 3rd. Our first presenter is Dr. John (Jack) F. Kerrigan is familiar to many HH patients and families…
Hope for HH is excited to announce our 2017 Family Forum in our nation’s capitol, Washington DC. The DC Family Forum welcomes all patients, caregivers and families touched by HH to join together for information, support, and community. This year’s Forum will include a brief update on the latest in HH treatment and research but…
Hope for HH Newsletters provide information and current news on research, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our e-Newsletters, Grant Award Announcements, Research Updates and information on upcoming fundraising events. Click Here Sign Up2023 February 2023 #1 – Announcing the 2022 Rosenfeld Rekate Pioneer Award…
Our team recently participated in board training and a mid-year strategic planning session. Due to COVID-19, both of these sessions were held virtually rather than in person as we had hoped. Like most organizations, our small nonprofit is feeling the impact of this pandemic but we are adjusting as necessary to ensure we continue to…
News, Research & Resources recently launched new content on the Hopeforhh.org! If you haven’t visited the Hope for HH website recently, we encourage you to check out the newly updated and reorganized section on News, Research and Resources. You will find the following information: News includes articles reported in the press & archived Hope…
Last Updated: 21 March 2019 Hope for Hypothalamic Hamartomas (“Hope for HH,” “we,” “us,” or “our”) offers this website located at https://www.hopeforhh.org (the “Site)” to you (“you,” “your,” and “user”) for your personal use and information. We want to protect the privacy of users accessing and interacting with the Site. The information you share with us will…
Hope for Hypothalamic Hamartomas (Hope for HH) is a volunteer-based nonprofit organization founded by parents of children with hypothalamic hamartomas (HH). Our goal is to create a single, credible source for information about the diagnosis, treatment, and support of individuals with HH. Every family touched by this rare disorder has a unique and often heart-breaking…