All of our speakers are confirmed for the 2017 DC Family Forum. We heard YOUR feedback and recruited speakers on the topics YOU most wanted to learn about including executive function, rages, behavior, endocrine, memory, CBD etc. If you have not registered yet, you will want to reserve your space ASAP. The forum begins Saturday,…
Hope for HH is happy to announce we have a limited number of scholarships available to assist members of our HH family wishing to attend the Family Forum in Washington DC. We will be offering 2 types of scholarships to those with financial hardships. We would also like to thank the Mooving Thru The Mud…
MEET OUR DC FAMILY FORUM SPEAKERS – DR. Oliver Oatman In this series, we will introduce you to the experts inside and outside of the HH community who will be presenting at the DC Family Forum on December 3rd. Please meet Dr. Oliver Oatman, a pediatric endocrinologist at Phoenix Children’s Hospital. Dr. Oatman will be…
MEET OUR DC FAMILY FORUM SPEAKERS – DR. MADISON M. BERL In this series, we will introduce you to the experts inside and outside of the HH community who will be presenting at the DC Family Forum on December 3rd. Please meet Dr. Madison M. Berl, Ph.D., ABPP, a board certified pediatric neuropsychologist at…
We asked our patients recently and here’s what they shared… “When I had seizures as a kid used to get a feeling that went from my head to my gut. I used to feel them coming on and tell my parents.” “I didn’t feel anything in my stomach, but overcome with happiness/the need to…
MEET OUR DC FAMILY FORUM SPEAKERS – DR. SALPEKAR In this series, we will introduce you to the experts inside and outside of the HH community who will be presenting at the DC Family Forum on December 3rd. Please meet Dr. Jay Salpekar, an internationally renowned physician and scholar in the field of neuropsychiatry. Dr.…
Using Focused Ultrasound to Treat Hypothalamic Hamartomas Interview with Dr. Travis Sean Tierney, Pediatric Neurosurgeon Nicklaus Children’s Hospital You recently used Focused Ultrasound to treat a hypothalamic hamartoma. What is FUS and how does it work? Has it been used to treat other diseases? Focused Ultrasound is a surgical method that uses highly focused acoustic…
AAN & AES endorse a New Clinical Guideline on SUDEP The American Academy of Neurology and the American Epilepsy Society recently published a practice guideline providing recommendations for neurologists to inform all individuals with epilepsy about the risk of sudden unexpected death due to epilepsy (SUDEP), the most common cause of mortality for people with epilepsy. Every patient…
Good Grief Batman! For a 5 year old boy recovering from HH surgery, what could be better than watching old Batman reruns on tv? Maybe a trip to the Batcave and a ride in the Batmobile? Impossible you say – not for kids living in Phoenix with challenging medical conditions or coming to Phoenix Children’s…
Izabella Michele Santos Doré passed away on October 18, 2016 due to complications of hypothalamic hamartoma. Izabella is missed each and everyday by her family and all those who were blessed to have known her. “They that love beyond the world cannot be separated by it. Death cannot kill what never dies.” –…