Hot Topics
Listen as Dr. Helen Cross describes findings from a recent study regarding cognitive and behavioral challenges in patients with HH.
Newly Diagnosed
Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.
For Professionals
Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.
For Donors
Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.
1 in 200k diagnosed worldwide
Often goes undiagnosed or misdiagnosed for years
Seizures commonly unresponsive to medication
Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances
As the school year Begins, it is so important to have an open discussion about disabilities... "children are rarely taught how to be open to disabilities and that it’s OK to become friends with someone no matter who they are or what disability they might...
"Show them it's completely normal to interact with someone who has a disability."
themighty.com
Today is National Nonprofit Day! Wonder what motivated the founders of Hope For HH to start the foundation nine years ago. Read our latest blog from Lisa Soeby.
Today is National Nonprofit Day
hopeforhh.org
Use these tips to help your child with epilepsy and family work towards a successful school year.
epilepsy.com
STAY INFORMED.
Important Research and Foundation news straight to your inbox.
To stay abreast of current HH news & information, simply click "Sign Up" and complete the information on the sign up form.