Hot Topics

HH Treatments – How Successful Are They?

Gelastic seizures have been shown to begin in the HH lesion and removing (or otherwise damaging or...Read More >

What is Executive Function?

For many students with HH, starting a new school year can be very stressful. For many parents and ca...Read More >

DC Family Forum | Meet The Speakers

MEET OUR DC FAMILY FORUM SPEAKERS -  SANDRA CUSHNER-WEINSTEIN In this series, we will introduce y...Read More >

HH Epilepsy | Achieving a Cure For HH

  In June 2017, Epilepsia, The Official Journal of the International League Against Epilepsy...Read More >

DC Family Forum | Now is the time to sign up!

School has started and summer is over.  The leaves will start changing colors and the end of the y...Read More >

Listen as Dr. Helen Cross describes findings from a recent study regarding cognitive and behavioral challenges in patients with HH.

Newly Diagnosed

Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.


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For Professionals

Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.


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For Donors

Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.

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1 in 200k diagnosed worldwide

Often goes undiagnosed or misdiagnosed for years

Seizures commonly unresponsive to medication

Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasWednesday, October 18th, 2017 at 2:04am

Get your Hope shirts!!
Awareness of #gelasticseizures November is #epilepsyawarenessmonth

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasTuesday, October 17th, 2017 at 2:51am

Since 2000, several different treatment approaches for HH have been developed that are recognized as effective and safe. Surgical and other treatment outcomes were studied and recently reported at the International HH Conference in London and are summarized in our recent blog.

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasMonday, October 16th, 2017 at 3:29am

October 19th Last Day to Order. Help raise awareness of Hypothalamic Hamartomas with Hope For HH gear. November is Epilepsy Awareness Month #purple #epilepsyawareness make sure you have your purple Hope shirts!! #gelasticseizures


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