In the News

Epilepsy Leadership Council (ELC) | 70th American Epilepsy Society (AES) Annual Meeting

 The Epilepsy Leadership Council (ELC)  (formerly Vision 20-20) is a coalition of professional, gove...Read More >

Session Highlights | 70th American Epilepsy Society (AES) Annual Meeting

 Inspired and Hopeful.At the conclusion of the five days, the Hope for HH Board of Directors felt a ...Read More >

Meet Jacob

Jacob’s JourneyJacob was born April 11, 1998.  He was such a cute bundle of golden hair.  We took hi...Read More >

Nov 1 kicks off Epilepsy Awareness month

30,000 patients live with HH everyday.Help HOPE raise awareness of epilepsy, seizures and HH. Click ...Read More >

Meet Shauna

I’m from County Clare in Ireland and I am 19 years old. I was born with a hypothalamic hamartoma. I ...Read More >

For Families

Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.

 

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For Professionals

Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.

 

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For Donors

Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.

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1 in 200k diagnosed worldwide

Often goes undiagnosed or misdiagnosed for years

Seizures commonly unresponsive to medication

Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasWednesday, January 18th, 2017 at 3:11pm
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Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasWednesday, January 18th, 2017 at 11:15am

Educating professionals around the world about SUDEP is just as important as informing patients and families! Have you had the discussion with YOUR neurologist? Let us know how that conversation went!

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Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasWednesday, January 18th, 2017 at 4:03am

Make a New Years resolution you can keep - sign up to receive Hope for Hypothalamic Hamartomas electronic newsletters distributed monthly and filled with HH and other information. You can sign up here http://www.hopeforhh.org/get-involved-3/ The latest newsletter can be found here:

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