In the News
For Families
Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.
For Professionals
Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.
For Donors
Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.
1 in 200k diagnosed worldwide
Often goes undiagnosed or misdiagnosed for years
Seizures commonly unresponsive to medication
Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances
Do you need help educating your family, friends, doctors, school administration, or co-workers about HH and the complex nature of this syndrome? We've created this tri-fold as a tool for you. Download and help bring knowledge and awareness to HH. http://www.hopeforhh.org/educational-brochures/
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Will you be attending tomorrow's (Nov.13) free webinar on Management of Harmful and Disruptive Behaviors in Epilepsy and Autism hosted by Child Neurology Foundation? We in the HH community know the struggles associated with this neurologic condition and the impact of behavior.
STAY INFORMED.
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