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Listen as Dr. Helen Cross describes findings from a recent study regarding cognitive and behavioral challenges in patients with HH.
Newly Diagnosed
Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.
For Professionals
Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.
For Donors
Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.
1 in 200k diagnosed worldwide
Often goes undiagnosed or misdiagnosed for years
Seizures commonly unresponsive to medication
Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances
The holidays are approaching and you will be busy shopping for gifts, decorations, and more. Don't forget to use smile.amazon.com and automatically raise donations for Hope for Hypothalamic Hamartomas. Shop for HOPE at smile.amazon.com/ch/27-1433464
So excited for Ilene Penn Miller, Hope For HH Co-Founder, for being a finalist for the 2018 Heroines of Washington hosted by the March Of Dimes. Tonight each of the finalists will be honored and the winner announced. We're all cheering you on Ilene!!
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