In the News

Meet Jacob

Jacob’s JourneyJacob was born April 11, 1998.  He was such a cute bundle of golden hair.  We took hi...Read More >

Nov 1 kicks off Epilepsy Awareness month

30,000 patients live with HH everyday.Help HOPE raise awareness of epilepsy, seizures and HH. Click ...Read More >

Meet Shauna

I’m from County Clare in Ireland and I am 19 years old. I was born with a hypothalamic hamartoma. I ...Read More >

3rd International Hope For HH Symposium | London UK

Listen to the most up-to-date HH research from international experts from the 3rd International Symp...Read More >

For Families

Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.


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For Professionals

Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.


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For Donors

Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.

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1 in 200k diagnosed worldwide

Often goes undiagnosed or misdiagnosed for years

Seizures commonly unresponsive to medication

Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasFriday, December 9th, 2016 at 9:52am

Epilepsy Awareness Month is over but we need to spread #epilepsyawareness💜 and knowledge about #hypothalamichamartomas throughout the year. Check out this great FREE Epilepsy Foundation of America program to get our youth involved. Kids are learning, creating awareness, educating, and participating...

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Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasThursday, December 8th, 2016 at 3:24am

Jacob was born April 11, 1998. He was such a cute bundle of golden hair. We took him home and he would make these funny noises, especially when he was sleeping. It sounded like laughter but we just thought he was a strange little one.

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Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasWednesday, December 7th, 2016 at 7:04am

Great opportunity for everyone affected by epilepsy! Thank you Lundbeck and CURE!

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