In the News
For Families
Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.
For Professionals
Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.
For Donors
Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.
1 in 200k diagnosed worldwide
Often goes undiagnosed or misdiagnosed for years
Seizures commonly unresponsive to medication
Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances
We need your help! Our team is currently working to make our educational materials available in multiple languages (Russian, German, French, and Spanish), however, we don't have a resource who is bilingual in Spanish and English. If you or someone you know is interested in...
10th Anniversary HH Warrior Shirts.
We still have LIMITED sizes of the crew neck short sleeve, women's v-neck, the hoodie and the long-sleeve crew neck in sizes ranging from youth small to 4XL. If you'd like to place an order or have questions...
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