Hot Topics

Ketogenic Diet and HH

Many families with HH and other refractory (difficult to treat) seizures search for options other ...Read More >

Transition Challenges and Hypothalamic Hamartomas (HH)

For many young adults with HH, the transition from school to work or higher education can be compl...Read More >

Join the live webcast from AES 2017 | Judith Hoyer Lecture

For NEAM 2017, get informed on the current state of epilepsy. Mark your calendar now for 12/1 for ...Read More >

Meet Diana – New HH Program Coordinator at Phoenix Children’s Hospital (PCH)!

    Hope for Hypothalamic Hamartomas (Hope For HH) is happy to announce the new HH Pro...Read More >

HH Treatments – How Successful Are They?

Gelastic seizures have been shown to begin in the HH lesion and removing (or otherwise damaging or...Read More >

Listen as Dr. Helen Cross describes findings from a recent study regarding cognitive and behavioral challenges in patients with HH.

Newly Diagnosed

Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.

 

Learn More

For Professionals

Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.

 

Learn More

For Donors

Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.

Learn More

1 in 200k diagnosed worldwide

Often goes undiagnosed or misdiagnosed for years

Seizures commonly unresponsive to medication

Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasSaturday, November 18th, 2017 at 8:44am

Thanks Max for your #MyShotAtEpilepsy! We love the broadway style!
With your help, we can make a difference. Take the challenge. It is as simple as a photo or video striking the “My Shot” pose & share - then tag three friends....

Hope for Hypothalamic Hamartomas
HypothalamicHamartom on Twitter
“Thanks Max for your #MyShotAtEpilepsy! We love the broadway style! With your help, @LGS_Foundation @tsalliance @Phelan_McDermid, we can make a big impact on epilepsy research. Take a photo or video striking the “My Shot” pose & share - then tag three friends. @cureepilepsy https://t.co/rd8m0s3Z...
twitter.com
Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasSaturday, November 18th, 2017 at 3:27am

What is Executive Function and how does HH related #Epilepsy impact it? Executive functions are necessary for goal-directed behavior. They include the ability to initiate and stop actions, to monitor and change behavior as needed, and to plan future behavior when faced with...

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasFriday, November 17th, 2017 at 1:00pm

Calling all our HH photographers!!! Great opportunity to express how 'Life is Beautiful' despite the diagnosis of HH and it's associated seizures. Deadline for photos is Dec.31. Check out International Epilepsy Day's post for more details.

STAY INFORMED.

Important Research and Foundation news straight to your inbox.

 

To stay abreast of current HH news & information, simply click "Sign Up" and complete the information on the sign up form.

 

SIGN UP