Hot Topics

Endocrine Dysfunction – What does it mean?

  Endocrine Dysfunction For most patients and families – the thought of HH surgery brings u...Read More >

Ketogenic Diet and HH

Many families with HH and other refractory (difficult to treat) seizures search for options other ...Read More >

Transition Challenges and Hypothalamic Hamartomas (HH)

For many young adults with HH, the transition from school to work or higher education can be compl...Read More >

HH Treatments – How Successful Are They?

Gelastic seizures have been shown to begin in the HH lesion and removing (or otherwise damaging or...Read More >

What is Executive Function?

For many students with HH, starting a new school year can be very stressful. For many parents and ca...Read More >

Listen as Dr. Helen Cross describes findings from a recent study regarding cognitive and behavioral challenges in patients with HH.

Newly Diagnosed

Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.


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For Professionals

Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.


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For Donors

Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.

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1 in 200k diagnosed worldwide

Often goes undiagnosed or misdiagnosed for years

Seizures commonly unresponsive to medication

Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasMonday, January 22nd, 2018 at 5:00am

Transform HH lives today! Start your own Facebook Fundraiser for Hope For HH.

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasSunday, January 21st, 2018 at 5:00am

Check out the highlights from 2017! We couldn't do this without your support!
We need your help to continue the momentum in 2018 and beyond. Please consider making a donation today to help with our ongoing programs in patient support, advocacy...

Hope for Hypothalamic Hamartomas
2017 Year In Review - Hope For HH
Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasSaturday, January 20th, 2018 at 9:51am

Study on epilepsy medication and its psychiatric impacts.


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