Hot Topics

HH Treatments – How Successful Are They?

Gelastic seizures have been shown to begin in the HH lesion and removing (or otherwise damaging or...Read More >

What is Executive Function?

For many students with HH, starting a new school year can be very stressful. For many parents and ca...Read More >

DC Family Forum | Meet The Speakers

MEET OUR DC FAMILY FORUM SPEAKERS -  SANDRA CUSHNER-WEINSTEIN In this series, we will introduce y...Read More >

HH Epilepsy | Achieving a Cure For HH

  In June 2017, Epilepsia, The Official Journal of the International League Against Epilepsy...Read More >

DC Family Forum | Now is the time to sign up!

School has started and summer is over.  The leaves will start changing colors and the end of the y...Read More >

Listen as Dr. Helen Cross describes findings from a recent study regarding cognitive and behavioral challenges in patients with HH.

Newly Diagnosed

Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.

 

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For Professionals

Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.

 

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For Donors

Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.

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1 in 200k diagnosed worldwide

Often goes undiagnosed or misdiagnosed for years

Seizures commonly unresponsive to medication

Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasFriday, October 20th, 2017 at 6:48am

Look who's coming!! We are so excited to have families from around the globe attending the 2017 event. Have you registered? Don't miss this opportunity to connect with others with HH as well as medical professions with HH expertise. Deadline to obtain discounted hotel accommodations...

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasFriday, October 20th, 2017 at 2:05am

Be part of the Hope For Hypothalamic Hamartoma team. Spread awareness! Last day to order shirts http://bit.ly/2fLGXs7
November is #epilepsyawarenessmonth

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasThursday, October 19th, 2017 at 10:43am

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