In the News

Potential Cause of HH Discovered!

Researchers at Columbia University, University of Melbourne and the Barrow Neurological Institute re...Read More >

New Research Into the Cause of HH

Researchers at Columbia University, University of Melbourne and the Barrow Neurological Institute re...Read More >

Hope For HH UK | Meet the Team

Sue Jackson, Secretary UK, Wrexham Sue’s daughter Faith, was diagnosed during a routine a...Read More >

For Families

Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.

 

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For Professionals

Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.

 

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For Donors

Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.

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1 in 200k diagnosed worldwide

Often goes undiagnosed or misdiagnosed for years

Seizures commonly unresponsive to medication

Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasWednesday, June 8th, 2016 at 9:06am

Hope for HH launches a new website! Check the website out here (http://www.hopeforhh.org) and be sure to SIGN UP to receive our enewsletter for regular updates on HH, support, research, conferences, and so much more! All the latest news important to patients, caregivers,...

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Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasSunday, June 5th, 2016 at 5:25am

Thank You Jill and Cale Arneson for sharing this photo! We are extremely excited to be featured on a RACE CAR!!! We hope Cale wins all of his races so the drivers behind him get to know our name ;)

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