In the News

Meet Guilherme

[see translation here] My name is Renato and I live in Brazil with my wife and 2 kids. I am ...Read More >

Thriving with HH

Hope for HH recently caught up with Sierra Crislip, a young woman that is not just living with ...Read More >

For Families

Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.

 

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For Professionals

Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.

 

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For Donors

Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.

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1 in 200k diagnosed worldwide

Often goes undiagnosed or misdiagnosed for years

Seizures commonly unresponsive to medication

Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasWednesday, May 15th, 2019 at 2:39am

Have you placed your order? Deadline extended until tomorrow May 15th.
https://www.customink.com/fundraising/hope-for-hh-10th-anniversary

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasTuesday, May 14th, 2019 at 3:38am

Dr.Yuen will be presenting on the “Spectrum of Endocrine Issues for Patients with HH.” at the upcoming 4th International Professional Symposium on Hypothalamic. We are excited to have Dr. Yuen’s expertise and interest in the hypothalamic hamartoma community.
#research

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