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Listen as Dr. Helen Cross describes findings from a recent study regarding cognitive and behavioral challenges in patients with HH.
Newly Diagnosed
Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.
For Professionals
Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.
For Donors
Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.
1 in 200k diagnosed worldwide
Often goes undiagnosed or misdiagnosed for years
Seizures commonly unresponsive to medication
Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances
Excited to announce our very own Ilene Miller has been selected as a Maryland-National Capital Area Chapter March of Dimes Heroines of Washington finalist. Ilene is a co-founder and the current Hope For HH President. She's being recognized for going above and beyond their professional...
On September 23, Hope For HH Co-Founder, Emma Nott, will be running in the Simplyhealth Great Bristol Half Marathon. Emma is hoping to raise awareness and donations for the Hope For HH foundation in honor of her son, Charlie, who lives with HH. Let's show...
"In a recent study of children and adolescents age 10 to 19 years who had epilepsy, the most commonly observed comorbid psychiatric disorders were attention-deficit/hyperactivity disorder (ADHD) and anxiety, and 26.8% of those with a psychiatric diagnosis demonstrated executive dysfunction. Independent risk factors for this...
Cognitive and linguistic deficits have been cited as risk factors for psychiatric comorbidity in pediatric epilepsy, along with family factors such as parenting style and quality of the parent-child relationship.
neurologyadvisor.com
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