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Brain Injury and Cognitive Function

Brain Injury and Cognitive Function March is Brain Injury Month and for many individuals with HH ...Read More >

Meet Kaitlyn

Kaitlyn's HH Journey We brought our perfect beautiful daughter home two days after she was born.  S...Read More >

Launched New Content | News, Research & Resources

  News, Research & Resources recently launched new content on the! If you...Read More >

A Sister’s Story

A Sister's Story by Annie Kane My name is Annie Kane, I’m 14 and I have two crazy siblings: my brot...Read More >

Listen as Dr. Helen Cross describes findings from a recent study regarding cognitive and behavioral challenges in patients with HH.

Newly Diagnosed

Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.


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For Professionals

Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.


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For Donors

Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.

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1 in 200k diagnosed worldwide

Often goes undiagnosed or misdiagnosed for years

Seizures commonly unresponsive to medication

Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasSaturday, March 17th, 2018 at 4:45am

#brainweek The brain's sensory perception and integration is performed by the parietal lobe. Touch sensation processing (pain, temperature), spatial orientation, movement coordination, visual perception are all the primary role of the parietal lobe. Individuals with parietal lobe epilepsy may experience There may be...

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasFriday, March 16th, 2018 at 6:29am

Challenges for those with a brain injury are complicated. Individuals with HH and other epilepsy disorders share many of the same struggles with cognitive function. It's important to realize that not all brain injuries are a result of trauma and in fact, brain tumors are...


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