In the News

Welcome our New Medical Advisory Board Members

  Hope for Hypothalamic Hamartomas recently welcomed 5 new advisors to our Medical Advisor B...Read More >

Facebook Live Q&A: When Laughing or Crying is a Seizure - Hypothalamic Hamartoma

 Community CornerJoin the Epilepsy Foundation and Hope for Hypothalamic Hamartomas on March 6 a...Read More >

Meet Faith

Faith’s Story My pregnancy with Faith was difficult, I developed a strange rash, which we never real...Read More >

NEW Book on Pediatric Epilepsy Surgery | By Hope For HH MAB Members

Congrats to Hope for HH Medical Advisory Board members Drs. J. Helen Cross & Alexis Arzimanoglou...Read More >

For Families

Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.

 

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For Professionals

Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.

 

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For Donors

Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.

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1 in 200k diagnosed worldwide

Often goes undiagnosed or misdiagnosed for years

Seizures commonly unresponsive to medication

Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasSunday, March 26th, 2017 at 3:40pm

Don't forget tomorrow, March 26th, is PURPLE DAY! Support #epilepsyawareness by wearing purple. Share your photos with us by tagging @Hopeforhh & #PurpleDay2017

Kay Ralston Prayers..
Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasSunday, March 26th, 2017 at 8:27am

Hope for HH Walk in Verrado, AZ! Also beautiful weather and lots of community spirit! We had 3 HH boys together feeling loved and not quite so RARE today 😉

Megan Dardis-Kunz ♥️♥️♥️♥️
Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasSunday, March 26th, 2017 at 3:46am

Our dc crew Walk for Epilepsy and hope for hh. 10 yrs in a row. It was a balmy 70 and the cherry blossoms were out too!!

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