Hot Topics

Focused Ultrasound | Interview with Dr.Travis Tierney

Using Focused Ultrasound to Treat Hypothalamic Hamartomas Interview with Dr. Travis Sean Tierney, P...Read More >

AAN & AES endorse a New Clinical Guideline on SUDEP

AAN & AES endorse a New Clinical Guideline on SUDEP The American Academy of Neurology and the...Read More >

Meet Gavin

Gavin’s Story Gavin was born on time and had a normal delivery. From the time he was about two we...Read More >

Exciting Research Grant Update | Dr. Varina Boerwinkle

Hope for HH is excited to update everyone on the work Dr. Varina Boerwinkle, from Texas Children’s...Read More >

Research Grants | Dr. Karen Wilcox & Dr. Peter West

If We Can Create an Animal Model for HH We Will Significantly Improve Our Understanding of the Con...Read More >

For Families

Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.

 

Learn More

For Professionals

Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.

 

Learn More

For Donors

Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.

Learn More

1 in 200k diagnosed worldwide

Often goes undiagnosed or misdiagnosed for years

Seizures commonly unresponsive to medication

Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasTuesday, August 22nd, 2017 at 7:04am

HH Families - We are proud to partner with the Child Neurology Foundation to conduct a brief survey concerning knowledge and communication about epilepsy between medical professionals and families. This survey has been developed to understand what families know about the effects of epilepsy and...

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasFriday, July 28th, 2017 at 2:39am

Great news - the Epilepsy Special Issue: Hypothalamic Hamartomas & Epilepsy has been made FREELY available to the public. BIG thanks to Dr. Jean Regis, head of Functional Neurosurgery and Radiosurgery @ hopital de la Timone (Marseille) Aix-Marseille University for leading the charge. As well...

STAY INFORMED.

Important Research and Foundation news straight to your inbox.

 

To stay abreast of current HH news & information, simply click "Sign Up" and complete the information on the sign up form.

 

SIGN UP