In the News
For Families
Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.
For Professionals
Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.
For Donors
Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.
1 in 200k diagnosed worldwide
Often goes undiagnosed or misdiagnosed for years
Seizures commonly unresponsive to medication
Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances
National Siblings Day - "There's a special kind of freedom siblings enjoy. Freedom to share innermost thoughts, to ask a favor, to show their true feelings. The freedom to simply be themselves." - Anonymous
It is National Volunteer Week #NVM2019. Did you know Hope For HH is a 100% #volunteer run organization?
Thankful to all our current and past volunteers for their selfless dedication to helping all of those impacted by HH.
STAY INFORMED.
Important Research and Foundation news straight to your inbox
To stay abreast of current HH news & information, simply click "Sign Up" and complete the information on the sign up form.