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Listen as Dr. Helen Cross describes findings from a recent study regarding cognitive and behavioral challenges in patients with HH.
Newly Diagnosed
Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.
For Professionals
Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.
For Donors
Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.
1 in 200k diagnosed worldwide
Often goes undiagnosed or misdiagnosed for years
Seizures commonly unresponsive to medication
Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances
Look who's coming!! We are so excited to have families from around the globe attending the 2017 event. Have you registered? Don't miss this opportunity to connect with others with HH as well as medical professions with HH expertise. Deadline to obtain discounted hotel accommodations...
Be part of the Hope For Hypothalamic Hamartoma team. Spread awareness! Last day to order shirts http://bit.ly/2fLGXs7
November is #epilepsyawarenessmonth
SUDEP Action Day is next Monday, October 23rd. Originally SUDEP Awareness Day, #SUDEPActionDay2017 is inspiring people to not only raise awareness about SUDEP and epilepsy-related deaths, but to act.
Find out how to take action on October 23rd:
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