In the News

Nov 1 kicks off Epilepsy Awareness month

30,000 patients live with HH everyday.Help HOPE raise awareness of epilepsy, seizures and HH. Click ...Read More >

Meet Shauna

I’m from County Clare in Ireland and I am 19 years old. I was born with a hypothalamic hamartoma. I ...Read More >

3rd International Hope For HH Symposium | London UK

Listen to the most up-to-date HH research from international experts from the 3rd International Symp...Read More >

For Families

Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.


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For Professionals

Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.


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For Donors

Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.

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1 in 200k diagnosed worldwide

Often goes undiagnosed or misdiagnosed for years

Seizures commonly unresponsive to medication

Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasTuesday, December 6th, 2016 at 2:20am

Thank you Dr Helen Cross for your outstanding presentation on the Research Update - Highlights from the 3rd International HH Symposium!

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Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasMonday, December 5th, 2016 at 9:21am

Having fun with the Canine Assistance dog 🐶 #aes2016. #hypothalamichamartomas #epilepsy

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Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasMonday, December 5th, 2016 at 2:18am

Ready to meet with some of our Medical Board members to plan next year's goals! Thanks Starbucks.

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