Trouble Sleeping?

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REN Sleep Study


Hope for HH seeks opportunities to better understand the many facets of living with HH and epilepsy. We frequently share research projects that encourage patients and caregivers to answer questions that will lead to a better understanding of particular topics.

The Rare Epilepsy Network in conjunction with The Children’s Hospital of Philadelphia (CHOP) is conducting a study about sleep to better understand how sleep health relates to chronic health conditions such as autism and epilepsy.  The study includes an online survey that parents may complete based on their child’s experiences with sleep.  Children may also be eligible to participate.  The survey will take about 10-15 minutes to complete.

If you would like to take part or learn more about this study, please visit the study website:  

If you have any questions please contact the CHOP study manager, Anna de la Motte, at or 215-590-3196.


Progress in epilepsy research requires individuals and families as partners in the research process — thank you for doing your part! The results from the sleep study will be disseminated to all participants when they become available.