We are so happy to announce Aimee Deroin has joined Hope for HH Information Committee. Aimee’s focus will be working with individuals and families in our Hope for HH community to share their HH Journey. If you are interested in sharing your story please complete this form.
A Little About Aimee:
From a very young age I knew I was meant for a life in science and being able to support those in need. I spent extra time throughout my years trying to figure out ways to lend a helping hand, and in more recent years with extra time being sparse, such times have been far and few between. I have no direct link to HH, no related family members or loved ones have been diagnosed with this rare disease. It wasn’t until a friend-turned-family member’s sister-in-law had an unusual finding on an ultrasound during pregnancy. Michelle’s perseverance as a caretaker and her drive to find help and a proper diagnosis for her son, Jaxon, has been an absolute inspiration. Watching her mother and raise two other children, along with Jaxon, with the amount of patience and resilience has been an absolute honor. It was because of her that I was introduced to Hope for HH. I am eager to help families share their stories and help others gain a better sense of community and realize they aren’t alone.
Want to make a difference? Join our Team.
If you are interested in becoming a volunteer for Hope for HH, to get the process started we invite you to complete the following Volunteer Inquiry Survey to gather a bit more info about you and your interests.
