HH Comorbidity Survey – Initial Results Today we continue our blog series discussing the initial results of the HH Comorbidity Survey on HH comorbidities, or co-existing conditions. We believe these symptoms and conditions may be un-diagnosed or under-diagnosed as a part of the HH Syndrome. If you have not read the first blog in this…
Pituitary Awareness Month – Adrenal Insufficiency October is Pituitary Awareness Month – and you may be asking yourself “Why should I care if I, or my loved one, have an hypothalamic hamartoma (HH) and NOT a pituitary tumor? Well, the hypothalamus is the master gland that feeds information to the pituitary gland, and when it…
Hope for HH is co-sponsoring the 4th International Symposium on Hypothalamic Hamartomas – a professional symposium for HH investigators, clinicians and researchers – in Washington DC Sept. 12-14. The Symposium aims to identify gaps in understanding and opportunities for future HH research studies and collaborations to improve diagnosis, treatment and care of both the seizures…
Endocrine Dysfunction For most patients and families – the thought of HH surgery brings up lots of questions and concerns. Sometimes we aren’t sure what to ask our surgeon regarding all possible complications. With so much focus on seizure control, the discussion of possible effects on endocrine function may be limited, but should definitely…
