SUDEP Awareness Series | Part 3 – SUDEP Research In Part 3 in our SUDEP blog series – SUDEP Research, we’ll provide details on the current research being done to find answers regarding the possible causes for SUDEP. Unfortunately, the causes of SUDEP...
SUDEP Awareness Series | Part 2 – Talking about SUDEP with your doctors In Part 2 in our SUDEP blog series – Talking about SUDEP with your doctors, we’ll provide information and guidance on how to begin the SUDEP conversation with your doctors....
SUDEP Awareness Series | Part 1 – What is SUDEP? Hope for HH has been made aware of two young adults with HH that recently passed away. Both cases are suspected of being related to SUDEP (Sudden Unexpected Death in Epilepsy). For most HH families – SUDEP...
One of our favorite organizations, CURE (Citizens United for Research in Epilepsy) is assisting Johns Hopkins in promoting its EpiWatch research study which will collect data about seizures and seizure treatment. The intent of EpiWatch is to provide those with...
AAN & AES endorse a New Clinical Guideline on SUDEP The American Academy of Neurology and the American Epilepsy Society recently published a practice guideline providing recommendations for neurologists to inform all individuals with epilepsy about the risk of...
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