Today is National Nonprofit Day. What kind of person starts a nonprofit anyway? I used to think it had to be someone that was a probably a celebrity, really smart, well connected, had access to a great deal of money and probably had lots of business sense. I had heard...
Hope for HH is excited to update everyone on the work Dr. Varina Boerwinkle, from Texas Children’s Hospital (TCH), is doing in her research to study resting state functional MRI (rs-fMRI) and Hypothalamic hamartomas. Initially, Dr. Boerwinkle performed the first ever...
If We Can Create an Animal Model for HH We Will Significantly Improve Our Understanding of the Condition and the Best Interventions The search for new treatments for the seizures and cognitive deficits resulting from hypothalamic hamartomas has been hindered by a...
HUGE THANKS to ALL around the nation’s capital and around the world who walked and wore purple on Saturday and Sunday for epilepsy and Hope for HH. Special shout outs to those below. If we missed you, please post your pics to Hope For Hypothalamic Hamartomas Facebook...
You may be wondering why we keep posting about the WALK? The easy answer is it’s something we can all do! On March 25th, thousands of people will gather in Washington, DC for the 11th Annual Walk for Epilepsy. This is the 10th year Hope for HH will have a...
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