Medtronic recently announced they received clearance via the CE (Conformite Europeenne) Mark to launch the Visualase MRI-Guided Laser Ablation System in Europe. This is great news for international HH patients that have been unable to use private pay insurance to cover the cost of the procedure, or have been unable to raise the large amount…
Launched New Content | Treatment Facilities Hope for HH has recently updated our treatment facilities page here for the United States. HH (hypothalamic hamartoma) is a rare brain tumor and is best treated at an epilepsy specialty center. For patients newly diagnosed with HH or those living with and managing this condition, we encourage you to seek…
Gelastic seizures have been shown to begin in the HH lesion and removing (or otherwise damaging or ablating) the HH can cure seizures. Until recently, HH with epilepsy was considered not treatable, since surgery on the hypothalamus was considered too dangerous. However, several surgical options have been developed that have proven to be quite effective…
Using Focused Ultrasound to Treat Hypothalamic Hamartomas Interview with Dr. Travis Sean Tierney, Pediatric Neurosurgeon Nicklaus Children’s Hospital You recently used Focused Ultrasound to treat a hypothalamic hamartoma. What is FUS and how does it work? Has it been used to treat other diseases? Focused Ultrasound is a surgical method that uses highly focused acoustic…
An exciting new study has launched to evaluate the use of focused ultrasound to destroy hypothalamic hamartomas. Learn more about the procedure and the study from Dr. Nathan Fountain. Listen to an interview and see images of this new procedure below. Hypothalamic hamartoma Hypothalamic hamartoma (HH) is a rare condition where a tumor-like structure…
