Hope for HH participates in key epilepsy wide initiatives including the Rare Epilepsy Network (REN) – a network of 29 rare conditions that all share seizures as a common side effect. The REN is collecting patient data about these conditions and leading critical...
Hope for Hypothalamic Hamartomas (Hope For HH) is happy to announce the new HH Program Coordinator for PCH – Diana La Rocque RN, BSN, CPN Ms. Diana LaRocque is the neurology nurse program coordinator for Barrow Neurological Institute at Phoenix...
In June 2017, Epilepsia, The Official Journal of the International League Against Epilepsy (ILAE), published a Special Issue titled: Hypothalamic Hamartomas and Epilepsy. Sincere thanks to international experts and HH Medical Advisory Board members Drs. Jean...
Using Focused Ultrasound to Treat Hypothalamic Hamartomas Interview with Dr. Travis Sean Tierney, Pediatric Neurosurgeon Nicklaus Children’s Hospital You recently used Focused Ultrasound to treat a hypothalamic hamartoma. What is FUS and how does...
If We Can Create an Animal Model for HH We Will Significantly Improve Our Understanding of the Condition and the Best Interventions The search for new treatments for the seizures and cognitive deficits resulting from hypothalamic hamartomas has been hindered by a...
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