HH Comorbidity Survey – Initial Results In today’s blog on the initial HH Comorbidity Survey results, we are going to share the surgical treatment spectrum as reported by survey participants. This information was shared by individuals with HH or caregivers of...
Gelastic seizures have been shown to begin in the HH lesion and removing (or otherwise damaging or ablating) the HH can cure seizures. Until recently, HH with epilepsy was considered not treatable, since surgery on the hypothalamus was considered too dangerous....
As many of you know, I recently started nursing school at UNC. This past Wednesday, in what has come to be my favorite class thus far, we covered the urinary system and many of the pathological issues patients may have with it. One if the topics was Acute Renal...
In late August 2007, when Ezri was 8 ½ months old, a large mass was seen on Ezri’s MRI. We were rushed into an appointment with our hospital’s neurosurgeon a few days later. At this appointment we described the symptoms Ezri had been experiencing (the precocious...
The neuro surgeon we are under has always been a very straight person. He told us from the beginning that surgery may not be an option for Faith as her lesion was so large and he was concerned about causing further damage to the hypothalamus. He promised us that he...
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