What is precocious puberty?
John F. Kerrigan, MD, Co-Director, Hypothalamic Hamartoma Program Barrows Neurological Institute
John F. Kerrigan, MD, Co-Director, Hypothalamic Hamartoma Program Barrows Neurological Institute
Recent and past news stories on hypothalamic hamartomas and it’s symptoms
Research articles discussing hypothalamic hamartomas and impact to the endocrine system
Research articles discussing dacrystic seizures and hypothalamic hamartoma
Research articles covering how HH impacts the cognitive, behavioral, and psychiatric aspect of those with HH
by Ilene Miller Some of you may wonder why I keep pushing for the Rare Epilepsy Network Registry (REN) so I wanted to share a more complete reply. My son Mark who just turned 13 also has HH. He was diagnosed a age 5. I live in Bethesda, MD and am an attorney by training.…
by Katherine Busby Today is Rare Disease Day. It’s the day to recognize all those thousands of diseases that largely go unnoticed, diseases that receive little funding to researchers from drug companies and from the government because the patient population isn’t big enough to make it cost-effective. Collectively though, thousands suffer from these diseases and with the…
Hi my name is Carrie and I am a young adult living in the UK and was diagnosed with HH in 2013. I am writing this blog to show how easy it is for patients with HH to be misdiagnosed and undergo unnecessary procedures. Thankfully I have turned my life around but it wasn’t easy after…
After nearly 8 years of a courageous battle with a hypothalamic hamartoma, Grace passed away unexpectedly on December 11, 2011. Grace brought joy to the lives of those who loved her with her gentle smile and loving personality. Gracie loved going to school, making jewelry, doing puzzles and taking care of her baby dolls. She…
Jake was diagnosed with HH when he was 4 years old. In spite of his seizures, he was a very happy young man. He loved to watch movies and he had acquired quite a collection of his own. He especially enjoyed his “movie nights” with his favorite Aunt! He also enjoyed drawing and coloring, as…
“Pushy Parents” that is what Edie Magnus the correspondent from Dateline NBC, called my husband and I. It is a title we have come to acknowledge with pride. Edie was interviewing one of the many doctors who believed there were no options left for our four-year-old son CJ. He was born with a rare brain…
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