There are many tools a physician can use to diagnose a patient with epilepsy. With all these options, you would think it would be easy to find the answers they are looking for. Let me fill you in on a little secret about diagnostic testing. Testing is often used to rule out a specific diagnosis.…
Being the caregiver of a child or loved one with a complex medical disorder who has health and behavioral issues is not easy, which is the driving force behind this year’s theme of the HH Blog. I combat this challenge too, as I am a parent of a child with a rare genetic disorder but…
Our daughter’s name is Abigail “Abby” Joyce Smith, she is 12 years old now, born December 2005. In utero, the doctors noticed she had a small dilation in one of her kidneys but everything else was perfectly normal. She had a normal birth and she had an ultrasound on her kidney to see if anything…
School has started and summer is over. The leaves will start changing colors and the end of the year will be here before we know it. For us here at Hope for HH, it is time to start focusing on the final details of this year’s Family Forum in Washington DC on December 2-3. If…
